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Finding meaning together in life after 16 years with ALS. My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We’ve spent 16 of those years with ALS since Todd’s diagnosis in 2010.

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Blog 2 months ago
Finding meaning together in life after 16 years with ALS
My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We've spent 16 of those years with ALS since Todd's diagnosis in 2010. I've been thinking recently about how we have found meaning within this difficult life we've been living for
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Blog 2 months ago
ALS Nexus 2026: Speaker shares hope navigating mom's ALS
For Emmy award-winning host and New York Times bestselling author Tabitha Brown, joy, gratitude, and hope have guided her through life since losing her mother to amyotrophic lateral sclerosis (ALS) in 2007. Speaking this week at the ALS Nexus conference i
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Blog 2 months ago
ALS Nexus 2026: Implantable device decodes patients' brain signals
An experimental implantable device from Precision Neuroscience enabled computers to decode brain signals to predict movement and speech, which could eventually help create assistive devices for people with amyotrophic lateral sclerosis (ALS). That's accor
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Blog 2 months ago
ALS Nexus 2026: People with diabetes may have lower ALS risk, study says
People with diabetes may be less likely to develop amyotrophic lateral sclerosis (ALS) than those without diabetes, according to findings detailed in a poster presented at the ALS Nexus conference. The study also found that people with a longer reported d
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Blog 2 months ago
$1 million grant supports trial of experimental treatment for ALS
The ALS Association has awarded Mitochon Pharmaceuticals a $1 million grant to support a Phase 2 clinical trial testing the company's experimental therapy MP-101 in people with amyotrophic lateral sclerosis (ALS). The study is still in the planning stages
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Blog 2 months ago
Higher physical activity tied to lower ALS risk in large UK study
Higher levels of physical activity were associated with a lower risk of developing amyotrophic lateral sclerosis (ALS) in a large U.K. study. The association was seen using both self-reported activity questionnaires and objective measurements from wrist-w
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Blog 2 months ago
Those earlier years with ALS seem like a different life
Nine years ago, and seven years into my husband Todd's ALS journey, we were still trying our best to get out and have a normal life. That fall, our 8-year-old son came home from school with a flyer from a local church. They were hosting a Harvest Festival
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Blog 2 months ago
Frailty-based screening tool may help flag people at higher risk of ALS
A modified frailty index based on five self-reported health measures may help identify people at higher risk of developing amyotrophic lateral sclerosis (ALS), according to a new study. The model, which included falls, whole-body pain, long-standing illne
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Blog 2 months ago
How I learned to live - and thrive - with ALS
While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better? I scanned the replies and thought to myself, "It all depends on which chapter of my ALS journe
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Blog 2 months ago
Stem cell therapy may slow ALS functional decline, researchers say
Stem cell therapies are generally safe and well tolerated in people with amyotrophic lateral sclerosis (ALS), and preliminary evidence from clinical trials suggests they may also help slow functional decline, according to a systematic review and meta-anal
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