{"id":1549538,"url":"https://alion.io/job/ptcbio-patient-support-specialist","title":"Patient Support Specialist - Bilingual (West Coast Candidates)","company":{"id":2004095,"name":"PTC Therapeutics","domain":"ptcbio.com","url":"https://alion.io/company/ptcbio","size_band":"501-1000","is_staffing_agency":false,"employer_type":"direct","is_intermediary":false,"listed_via":null,"ats_vendor":"Workday","truth_index":null},"role":"Customer Success","role_family":"Customer Success","seniority":null,"employment_type":"full_time","work_mode":"remote","remote_scope":"stated_countries","remote_scope_basis":"posting_text","remote_working_hours":{"label":"PT","utc_offset_min":-8,"utc_offset_max":-8},"hiring_geo_confidence":"explicit","locations":["United States"],"countries":["US"],"hiring_countries":["US"],"hiring_countries_total":1,"salary":{"min":97100,"max":122200,"currency":"USD","period":"year","gross":null,"usd_annual":122200},"salary_estimate":null,"experience_years_min":null,"visa_sponsorship":false,"relocation_package":false,"has_equity":false,"technologies":[{"name":"HIPAA","optional":false},{"name":"Microsoft Office","optional":false}],"status":"live","first_seen_at":"2026-09-16T00:00:00Z","employer_posted_date":"2026-10-20","last_verified_at":"2026-10-29T06:12:19Z","board_verified":true,"closed_at":null,"days_open":43,"trust":{"level":"ok","repost_count":1,"flags":[],"days_open":43},"description":"PTC Therapeutics is a global commercial biopharmaceutical company. For over 25 years our team has been deeply committed to a unified purpose: Extending life’s moments for children and adults living with a rare disease.\nAt PTC, we cultivate an inclusive culture where everyone feels valued, respected, and empowered. We welcome candidates from all backgrounds to join our team, fostering a strong sense of belonging.\nVisit our website to learn more about our company and culture!\nSite: www.ptcbio.com\nJob Description Summary:\nThe Patient Support Specialist at PTC supports rare disease patients (e.g., PKU) through focused case management for pediatric patients and their caregivers, as well as adult patients enrolled in PTC Cares. This role supports coordination of therapy initiation, managing patient-level logistical needs in collaboration with the Sales, Patient Engagement, and Case Manager teams, promoting long-term treatment adherence, and navigating life-stage transitions (e.g., childhood to adolescence, transition to adult care).The Patient Support Specialist also serves as a PKU subject matter resource for the Patient Services team to promote consistent, high-quality patient support. This role does not provide medical advice but focuses on product training, adherence, and logistical responsibilities using approved materials.\nThe Patient Success Liaison supports adherence to relevant regulatory and compliance requirements and company Standard Operating Procedures (SOPs) as appropriate.\n.\nJob Description:\nResponsibilities:\nEducate patients and caregivers on disease state, medication safety, administration and storage via phone/video and other approved channels.\nWork hand-in-hand with Sales, Patient Engagement, and Case Manager teams with the assigned Case Manager, Patient Engagement and Sales to coordinate therapy initiation and ongoing patient support, align on patient-level logistical needs, and ensure a seamless experience for patients enrolled in PTC Cares.\nUtilizes resources to empower patients and improve treatment compliance.\nIdentify and address adherence barriers (diet fatigue, taste preferences, social pressure, school/work constraints, access challenges, psychosocial factors).\nProvide proactive follow-up based on program triggers, risk, missed check-ins, or patient-reported concerns.\nSupport transition milestones (e.g., increasing adolescent independence, transition to adult care teams, major life events that affect dietary adherence).\nCoordinate with caregivers and healthcare providers, as appropriate and permitted, to reinforce plans and continuity of care.\nEscalate urgent concerns, clinical red flags, or safety issues per program guidance and required reporting procedures.\nAct as the PKU resource for Patient Services staff-answer questions, support complex cases, and provide coaching on patient communication approaches.\nContribute to the development and refinement of PKU-specific workflows, scripts, and patient education tools.\nShare themes and insights with leadership (e.g., common adherence barriers by age group) to improve services and patient experience.\nDocument all patient interactions accurately and in a timely manner in approved systems.\nMaintain compliance with HIPAA/privacy requirements and PTC Cares program standards.\nParticipate in quality improvement initiatives and support adherence/outcome tracking as defined by the program.\nQualifications:\nBachelor’s Degree and 5+ years of clinical nutrition/nursing and/or patient counseling experience with demonstrated adherence/behavior change support skills. Active, Dietitian/Nursing license and/or Master’s degree preferred.\nMetabolic Dietician or Pediatric Dietician and/or nursing expertise with practical, real-world application across life stages.\n Bilingual (as aligned with patient population needs).\nAbility to drive sustained adherence through individualized coaching and barrier resolution.\nHigh-quality documentation, organization, and follow-through.\nCollaborative, consultative approach-trusted resource to the Patient Services team.\nExperience with PKU and/or inherited metabolic disorders across pediatric and adult populations.\nStrong competency in patient education, motivational interviewing, and coaching (including video/telephone delivery).\nStrong interpersonal and communication skills to interact with patients, families, and HCPs.\nHigh proficiency in handling patient logistics and tracking therapy adherence.\nAnalytical thinker with excellent problem-solving skills and the ability to adapt to changing priorities and deadlines.\nExcellent understanding of the pharmaceutical delivery process and the ability to work compliantly/appropriately within the industry.\nExcellent planning, organization, and time management skills, including the ability to support and prioritize multiple projects.\nProficiency with Microsoft Office.\nAbility to work independently and collaboratively, as required, in a fast-paced, matrixed, team environment consisting of internal and external team members.\nSpecial knowledge or skills and/or licenses or certificates preferred.\nExperience in rare disease patient services, hub services, specialty pharmacy, or patient support programs.\nFamiliarity with EMR/CRM documentation and metric-driven patient outreach.\nTravel requirements: Up to 30%\nCandidate location: U.S. West Coast (Pacific Time Zone).\nExpected Base Salary Range:\n$97,100 - $122,200. The base salary offered will be contingent on assessment of candidate education level, background, and experience relative to the requirements of the position they are being considered for, as well as review of internal equity.\nIn addition to base salary, PTC employees are also eligible for short- and long-term incentives. All eligible employees may also enroll in PTC’s medical, dental, vision, and retirement savings plans.\nEEO Statement:\nPTC Therapeutics is an equal opportunity employer. We welcome applications from all individuals, regardless of race, color, national origin, gender, age, physical characteristics, social origin, disability, religion, family status, pregnancy, sexual orientation, gender identity, gender expression, disability, veteran status or any unlawful criterion under applicable law. We are committed to treating all applicants fairly and avoiding discrimination.\nClick here to return to the careers page","description_format":"text","description_chars":6365,"description_truncated":false,"requirements":{"experience_years_min":null,"management_years_min":null,"team_size_min":null,"manages_managers":false,"education":{"level":"bachelor","optional":false},"security_clearance":false,"languages":[]},"benefits":["Equity","Retirement plans"],"hiring_locations":[{"name":"United States","iso":"US","kind":"country"}],"hiring_excludes":[],"relocation_offered":false,"industries":["Cell & Gene Therapy","Rare Disease Therapeutics"],"lifecycle":[{"event":"open","at":"2026-09-30T23:49:22Z"},{"event":"close","at":"2026-10-10T20:24:27Z"},{"event":"reopen","at":"2026-10-21T17:58:54Z"}],"visa":[],"liveness":{"score":18,"band":"cold","label":"Long shot","p_open":1,"p_active":0.511,"p_room":0.35,"age_days":43,"expected_fill_days":15,"reasons":["conf:4","win:tail"],"computed_at":"2026-10-29T05:49:05Z"},"pay":{"stated_usd_annual":122200,"is_top_pay":true},"html_url":"https://alion.io/job/ptcbio-patient-support-specialist","json_url":"https://alion.io/job/ptcbio-patient-support-specialist.json","meta":{"generated_at":"2026-10-29T12:26:02Z","cache_seconds":300,"methodology":"https://alion.io/methodology","terms":"https://alion.io/terms","contact":"https://alion.io/contact","api":"https://alion.io/developers","about":"Alion is a live layer of people, companies and AI agents: who they are, whether they are real and active right now, what they do and how to work with them, readable by people and by agents and paid per call.","catalog":"https://alion.io/catalog.json","usage":{"tier":"crawler_verified","counted_by":"address","units_charged":1,"used_today":18662,"day_limit":null,"remaining_today":null,"minute_limit":300,"resets_at":"2026-10-30T00:00:00Z"}},"offers":[{"id":"company.slices","title":"One company in depth, by slice","status":"live","price":{"credits":0.02,"usd":0.002,"plus_per_slice":{"credits":0.05,"usd":0.005}},"unit":"per company, plus each slice with data","note":"the employer in depth","call":{"mcp_tool":"get_company","arguments":{"id":2004095},"rest":"https://alion.io/mcp/rest/get_company?id=2004095"},"human":"https://alion.io/catalog?offer=company.slices&for=job%2Fptcbio-patient-support-specialist"},{"id":"market.stats","title":"A market slice: pay, demand and time to fill","status":"live","price":{"credits":1,"usd":0.1},"unit":"per slice","note":"pay, demand and time to fill for this role and place","call":{"mcp_tool":"market_stats"},"human":"https://alion.io/catalog?offer=market.stats&for=job%2Fptcbio-patient-support-specialist"},{"id":"job.search","title":"Open jobs by role, technology, place, pay and visa","status":"live","price":{"credits":0.02,"usd":0.002},"unit":"per posting in a list","note":"similar open postings","call":{"mcp_tool":"search_jobs"},"human":"https://alion.io/catalog?offer=job.search&for=job%2Fptcbio-patient-support-specialist"},{"id":"company.verify","title":"Is this company real and active right now","status":"pilot","price":null,"unit":"per company","request":{"url":"https://alion.io/catalog/request","method":"POST","body":"{\"offer\": \"company.verify\", \"for\": \"job/ptcbio-patient-support-specialist\", \"note\": \"what you need it for\"}"},"human":"https://alion.io/catalog?offer=company.verify&for=job%2Fptcbio-patient-support-specialist"}],"agent":{"mcp":"https://alion.io/mcp/jobs","mcp_open":"https://alion.io/mcp/open","next":[{"tool":"get_job","arguments":{"id":1549538}},{"tool":"search_jobs","arguments":{"company":"ptcbio.com","detail":"compact"}},{"tool":"match_people","arguments":{"job_id":1549538},"note":"people open to offers who fit this vacancy"}],"note":"The same data through MCP tools: https://alion.io/mcp/open needs no sign-in (compact searches, postings, people); https://alion.io/mcp with an Alion account has everything. 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